Dear mr social worker
Further to our recent meeting I would like to clarify a few points.
Firstly that the role that
you and Social Work are to play. You
commented that “we support the child, we don’t support the family” but we
believe that this is not the case, quoting directly from the East Renfrewshire
Council web page: “We provide assessment
of need and on-going support to families affected by substance misuse, mental
health, children affected by disability, families experiencing problems due to
separation and loss and with children experiencing difficulties with trauma or
behavioural problems”. Given that we are
currently undertaking an assessment of need and we do not know the outcome of
this, we hope that it becomes clear that we as a family are indeed in need of
support: The Children’s Act of 1989 states that in the case of a child with
special needs that the family will be assessed as a whole unit. Therefore, in conjunction with the assessment
of need, we ask for a family assessment and or a carer’s assessment to be undertaken.
Secondly your statement that
Eilidh “has few needs over her peers at this age, but that this will change
over time”. We also disagree with this:
Eilidh is in receipt of the highest rate of DLA which in itself tells us that
her needs are significantly more than her peers. I have included a copy of the completed DLA
application form for you to review which gives in detail the level of input
that Eilidh requires now. I hope that
the level of care Eilidh requires will become apparent to you and subsequently
will be reflected in our assessment rather than a dismissive generic remark
regarding a child you do not know, with a disability you have only some
awareness of.
Lastly, we were disappointed
to hear that in many families living with children with special needs, one
parent may indeed need to give up working to care for their child, relying on
benefits to supplement their family income.
It would be naive to imagine that this isn’t the case for some, but I
would hope that with more support - emotional, psychosocial and physical - that
fewer parents would feel that they needed to give up working. Of course, the issue of resources - and lack thereof
- would be cited as a reason not to be able to provide such support but with
millions being put into benefits, and with the Welfare Reform Bill only
reducing these benefits, therefore impacting on people’s quality of lives,
surely more time, energy and money should be put into providing support to keep
parents in employment, enabling and empowering them to live as a family more
independently? That said, it is our hope
that we can both remain in employment to the benefit of all our family but look
for support in doing this.
We look forward to working together in the
assessment of our needs and investigating the role and benefit of Direct
Payments for individual care for Eilidh, with the ultimate and common goal of
supporting our family as a whole unit.
Yours sincerely
h0pefulmummy
a mummy looking for hope for us and many more like us









3 comments:
I hope your letter reaches someone with some sense. It sounds horrible. x
thank you ellen, it certainly wasn't the best of starts to our relationship with SW!
Good on you for speaking out!
We need to expose the kind of indifferent attitudes special needs parents are met with when they reach out for help and support - reach out for what they are entitled to.
Shame on them for being so ill-informed and thank goodness, unlike so many other worn-down parents you have the energy to stand up and challenge this kind of faceless bureaucracy.
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